UCB’s continued commitment to leading research aimed at improving treatment outcomes for people living with neurological conditions.Data include the use of FINTEPLA®▼ (fenfluramine)1 in Dravet ...

About this study The purpose of this study is to assess the effect of zorevunersen to reduce the frequency of major motor seizures in patients with DS. Major motor seizures are defined as the ...

The Stanley Brothers created Charlotte's Web, the CBD supplement that’s worked wonders on seizures. Now they are developing ...

UCB announces positive results from GEMZ phase 3 study of fenfluramine in CDKL5 Deficiency DisorderPhase 3 study met primary and key secondary clinical endpoints, marking the third developmental and ...

A Surbiton couple is backing a UK-wide campaign to raise awareness of a rare form of epilepsy that affects their daughter. Jennifer and Tom Allen's nine-year-old daughter, Beth, has Dravet Syndrome.

The company has already secured approval for Fintepla in treating Dravet syndrome and Lennox-Gastaut syndrome.

A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a ...

Just leaving the house is no small undertaking for Quincy Hostager and his mom, Maria. “It’s a lot,” she says. “He has a G tube, he has a pacemaker, he wears pull ups, he needs help, and he’s heavy.” ...

The awards were unveiled yesterday to mark International Dravet Syndrome Awareness Day – a day dedicated globally to raising ...

New research has shed light on the enormous psychological impact on families caring for a child or adult living with Dravet Syndrome. It’s a devastating and complex form of epilepsy that affects ...

Galia Wilson, Chair of Trustees for Dravet Syndrome UK, said: “Dravet Syndrome is a devastating, life-long and life-changing condition that affects the emotional well-being of all the family, but all ...

Paige Figi — mom to Charlotte Figi, the child whose story captivated the nation as CBD helped her seizure disorder — tells ...